Staying busy. Really focused researching some things for the next disability case I might be assisting with. Seems daily I’m adding more things to our agenda when I meet with the young lady, Jamie, in a few weeks. Hope to get a lot done with her and really be an assistance when we meet up.
Also on this quick “business trip,” made plans with my good friend Smitty and Bethel church one day. Really getting excited.
Very excited about the brain inury reading and new books I’ve begun. So many new insights.
Equally as excited about my upcoming books. Can’t remember if I posted here that Tate Publishing did go under. What a shame. We’ll see what comes. Yesterday sent one to a new publisher who wanted to see my work. My Mitochondrial Disease book has taken a slightly different direction as some key players dropped out. The next brain injury book I’m doing is starting to take a different shape, as well.
Been putting a packet of materials together for my friend in Georgia, Jamie Whitlock. We’re trying to help this dedicated, hard-working young lady get disability. Heartbroken so many of my TBI friends have been left in a jam. That the government would have no more empathy and care for us is beyond me. Hopefully we’ll be able to draw some people’s attention.
Located this young woman on a brain injury page on facebook. A big shout-out to Wendy Proctor, the site’s director or moderator. It is phenomenal how we who have been tried by “fire,” as it were, can encourage and support each other. Such would know that only those of us who are enduring a brain injury can accurately understand each other’s plight. Each of our cases is unique and distinct; yet multiple parallels and characteristics we share.
Crazy. Recently noticing what probably not too many others see. I’ve been awakened to more dear people adversely affected by the horrors of brain trauma, and this has occurred on a daily basis. Physicians, courts, employers, and the government all turn a blind eye to these souls in despair. I am working frivolously on the case of Donna Frank to help her get disability. What she has had to endure makes me gasp. A gentleman I meet with weekly, Frank Lott, has his share of troubles. A stolen mind along with the inability to walk. Physically, we hope to get better but what about all other areas? It has been a joy to work closely with the local hospital and mentor those with brain trauma. Their monthly TBI support group is amazing. One of my sweet friends there, Jordan Hendrix, also has been plagued by this “invisible injury.” Multiple similarities, yet our cases differ extensively regarding extent, affects, and outlook. Watching her persevere against all odds is amazing. She has absolutely been a great influence on me. I have been blessed, also, to be a part of a facebook brain injury support group. Thank you, thank you whoever put it together. Happy again but sad. Glad there are so many of us to rally behind one another, but sad for how many instances of this dreaded reality there are. One of the sweet ladies, in fact, may be the subject of one of my next books. Jaime Whitlock has been through ordeal after ordeal related to her brain injury. We want to shed light on some of the hurtful and harmful things that are occurring. Particularly her, but even on a national and international scale.
Super Trauma Survivor’s support group at the hospital this week. Met so many new friends. Had been awhile. Fortunately, they hired a new Trauma (social) worker for us to coordinate the support group and activities. Began by briefly sharing our “stories” and who we were and then talked about certain topics. All very interesting. I have even friended a few on facebook. In fact, we may have a few of them over to our house some weekend soon.
Been continuing to meet with two TBI victims. One is soon having a court case for her disability, and my heart goes out to her so much. Why will not the government see fit to step in and help those with pre-existing conditions? So, have been scrupulously working on an outline we will soon present her attorney. It’s taken me over ten hours and have had so much focused time.
Another gentleman I’m contacting also had a very severe accident. It has left him bedridden for months. Such a pleasure to see him out of his wheelchair, with support, and taking a few steps.
And still doing research for my next book(s). Fascinating subject matter, all of it, or each topic.
Also at the support group, one gal became my friend, Jordan. She works at the hospital and may assist me in several aspects of my writing. SO happy about that.
Had been wanting to share this publicly, but maybe on this website it will be less seen and less likely to be perceived in a negative light. Maybe the gentleman will not even see this post. First, I am grateful for life, for the opportunity to be an author, and to experience the blessings God has provided me. This last week I got a product from a friend on a local swap website. Turned out the dear fellow was in a wheelchair with other problems I will not mention. One of my favorite sayings: you don’t realize what you have, the blessings you have been gifted with, until you look around and see someone less fortunate. The Lord be praised.
On another note, the second edition of my debut book is still at the publisher. In the meantime, besides doing more research for my second book which also has to do with brain injury, I’m working on a medical project. This book is on a saddening subject and has to do with Mitochondrial Disease.
Very busy the last few days. The Mitochondrial Disease book project I’d been working on had been on the shelf for more than a year. While I wait for the second edition at the publisher to get done, and in the midst of my other brain injury research, decided to resurrect it a few days back. Between the three or four days, spent upwards of 20-25 hours on it. The lady with whom I’d been doing the “memoir” on had to drop out, so definitely a different story line. Now a completely different take, one mostly from a medical point of view. Hoping to include a few case studies.
Blessed beyond words. The last month or so have truly befriended one of my “clients”- or ladies I advocate for – excuse me, Lee Memorial. Our stories with the TBI’s are somewhat similar, though her instance unique. Were one convinced to look underneath the surface of her skin and see her harsh realities, they would find several things. Her heart of gold, brilliant personality, internal beauty, intertwined with some of the peculiar idiosyncrasies of her unique traumatic brain injury. Most would not even notice the latter. I did not. She presents herself marvelously. It may be that some of her close friends who knew her life pre-trauma and what she was like before may have a better idea. I have encountered no one that has not immediately fallen in love with her. My children adore her. She has such an easy-going personality. They love it when she comes over and can babysit them. That would be one of the highlights of their week.
I am a nobody, more or less, in this situation but am working diligently on this precious one’s behalf. I have been scouring the internet for useful information. We sent a letter to the governor’s office, who has taken an interest in this case, and they are working on it. Contacted me by phone to say as much. We’re finalizing a note to send to the hospital’s financial office and debt forgiveness program. This may be very helpful. And she was encouraged to consult an attorney. Looks like this week they will have their initial meeting. Cognitively, perceptually, emotionally, psychologically, most importantly, financially, damaged beyond degree, this week the young lady may begin to see some light at the end of the tunnel.
Finally, I have taken such a genuine interest in my friend’s case because, with everything within me, I want her to get better. Though she will continue adapting and improving for a lifetime, to help her find her new normal. She reminds me so much of me back in the day when I needed so much assistance. Further, I am so grateful to be able to use this lady’s story as a case study in the next book I am authoring.
When the day began, I was lovin’ it. Minimal sleep last night beside the point, but got recharged at McDonald’s. That’s why I was lovin’ it:) Had a few errands to take care of this morning. Will have to remember to contact Harmon’s Photography tomorrow for two spare dvd’s. Making one, then copies, of my accident video. Don’t know what happened to the one from Ohio I’d had done. Oh well. A little after 12 today, Randy Curro, came. Did quite a bit of talking, had great stories, great ideas. Very impressed by the strides I’d made this week in his program. Hopefully we’ll get my friend interested, BL. He did make us an offer. A shame more people did not teach neuroplasticity, I told him. Oh well. Hopefully we’ll help promote the program in the new book we’re doing in the works. Ran some errands this afternoon. Time almost to go to a favorite beach area/lookout spot on the river but didn’t make it. Some great ideas came to mind moments ago for my friend battling throbbing headaches.
No, not necessarily a ‘writing’ post but she is one of my case studies for next writing project. So that may legitimize it. Won’t say her name again b/c of confidentiality. We have so much in common- our brain injury tendencies- love being with her. Whereas I’m 32 years removed, she’s only one half year post-trauma. In a sense, like a ‘been there, done that’ thing, but thinking my situation pales in comparison to hers. Grateful to help her in any way possible. Trying to offer as much love and support as I received growing up. We are tremendously thankful. (Killer insights this morning to share with her pp. 37, 38 from one of my books.) We’re doing a few things next week. Looking forward to that. The developing plot- it’s complicated- may be used in an upcoming book I’m working on. Unless we do a memoir of her life. Not sure she wants to go that route, though.